Round and Round
Monday, March 5, 2012 - Well the good news is that my MRI came back stable. Yeah! The frustrating thing has been getting started on medication. My doctors office sent over the prescription order over a week ago. I thought they got insurance figured out and the company put me on their copay program because my total for meds was over $6,800. Well I should have known it would not be that easy. The pharmacy called me last Thursday to place the order and I was still going to owe over $2,800. I told them that was not correct so they said that it needed to be rerun through my insurance and they would call me back. I had not heard from them by today so I called them back. Now they said I owed over $2,600. GRRRRRR! So I called the company with the medication and they said that was not correct so while I held on the phone they called the pharmacy and got it straighted out. In the end the company will only cover $2,500. So much for the copay assistance program. Of course they did not offer me any other option. So I asked if they had another assistance program (I already knew they did) and she said yes but I would have to qualify. Well guess what we qualify. It helps to be poor. :( Yeah! Now to wait for the four page application and then send it back to wait another few days and then maybe I can think about having my medication. Lets see how may road blocks I run into this time.
Stuff
Sunday, February 19, 2012 - Wow it has been a very long time since my last post. We have just been doing the school and work thing. Dylan has had a few struggles this school year that we are still trying to sort through but his grades are good. We have been dealing with peer issues and some ADD issues. These are things we have been dealing with since kinder but I am always told there is not a problem but this year I finally had a teacher come to me and tell me we have a problem. We are trying to figure out the best way to help him.
Emily is doing very well in school. I think she may pass Dylan in reading levels soon. We have had her tested for Talented and Gifted. We will not know any results until May. Learning just comes very naturally to her.
Things have been going very well for me at work. I still LOVE my job.
As for MS well..... Not so good lately. From my past posts you all know I have been off of medication for about 5 or 6 months. Not because I didn't need to be on it but because I am selfish! I hate taking my medication. Well, I will no longer have that option. I have been having MS symptoms that I can no longer ignore. I went to my ophthalmologist and he did his annual picture of my optic nerves and found changes in my left eye now. His report had not made it to my neurologist by the time I went in for that appointment this past week. But after telling my doctor my symptoms he is fairly convinced that my MRI will show progression. I will be going in for another MRI tomorrow afternoon to see what is going on in my brain. I will then start medication after that.
We will have to start from square one with medication again. This is a different medication than the one I was on before. It is not supposed to have the side effects but it is an injection everyday. Under our insurance they will cover $600 a month but we have to pay $2,600 a month for the medication. So once again we are going to have to pull some stings to get my medication paid for. There is no way we can pay $2,600 a month. Not even for one month.
I really need to learn how to post when things are good not just when there is new. :( I will post as soon as I have my results back from my MRI.
I HATE MS!!!!!!!
Emily is doing very well in school. I think she may pass Dylan in reading levels soon. We have had her tested for Talented and Gifted. We will not know any results until May. Learning just comes very naturally to her.
Things have been going very well for me at work. I still LOVE my job.
As for MS well..... Not so good lately. From my past posts you all know I have been off of medication for about 5 or 6 months. Not because I didn't need to be on it but because I am selfish! I hate taking my medication. Well, I will no longer have that option. I have been having MS symptoms that I can no longer ignore. I went to my ophthalmologist and he did his annual picture of my optic nerves and found changes in my left eye now. His report had not made it to my neurologist by the time I went in for that appointment this past week. But after telling my doctor my symptoms he is fairly convinced that my MRI will show progression. I will be going in for another MRI tomorrow afternoon to see what is going on in my brain. I will then start medication after that.
We will have to start from square one with medication again. This is a different medication than the one I was on before. It is not supposed to have the side effects but it is an injection everyday. Under our insurance they will cover $600 a month but we have to pay $2,600 a month for the medication. So once again we are going to have to pull some stings to get my medication paid for. There is no way we can pay $2,600 a month. Not even for one month.
I really need to learn how to post when things are good not just when there is new. :( I will post as soon as I have my results back from my MRI.
I HATE MS!!!!!!!
MS Walk
Sunday September 25, 2011 -
It is that time of year again. We are quickly approaching the MS Walk. It will be at the Dell Diamond on Saturday October 29th at 10 a.m. This is a great fundraising event to help those whose lives have been affected by MS. What is MS? Multiple Sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another.
How you can help……..
· Register for the walk and come walk with me to show your support. Registration is free but you can make a donation when you register if you would like.
· Make a donation on my fundraising page that will go to the National MS Society and help those with MS. I am one of those people that your money will benefit. I have used several of the MS Societies programs and will continue to for the rest of my life.
I hope I will see all of you there. If you have any questions please let me know and I will be glad to help. Thanks for all of your support.
Amanda
The After Photos!!!
Tuesday, September 6, 2011 - Well I promised pictures of my classroom today so here they are.
I am not sure the pictures do it justice. Thanks mom for your help!!!!! Classroom start up is very pricey.
My Classroom
Monday, September 5, 2011 - I have worked many hours the last two weeks getting my classroom ready. It is finished!!!!!!!! Here are the before pictures. I will post the after pictures tomorrow. :) You will not believe it is the same room.
School
Monday, September 5, 2011 - Dylan seems to be enjoying school and likes his teacher. Emily likes school some of the time. She does not like the fact that the day is so long. She is having a hard time adjusting to the 7 hour day. We also learned this past week that she does not like the fire alarm at school. They had a drill one day last week and she came home very upset. Hopefully, next drill they have will not upset her as much. Overall I think the kids are having a great start to the school year. We will see what happens in the next few weeks when things really get rolling.
First Day of School
Monday, September 5, 2011 - Happy Labor Day! Well I am very slow at getting these posted but here are pictures from Emily and Dylan's First Day of School.
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