A Whole New World

Saturday September 26, 2009 - I had my appointment with the neurologist Thursday. It was fairly uneventful. He didn't really say much about my symptoms, but then again what can he do about them. He did give me some medication to give me more energy. I have been spending lots of time in bed sleeping. On days I don't work I will stay in bed either half the day or all day. I am thinking it is a combination of issues; lack of routine, the need to exercise and maybe a little depression. I am trying to change my routine and exercise more and see if that helps first. I hate taking lots of medication. I will go back for my three month check up in January.

On the subject of exercise, I went to a pilates class Thursday night that is for MS patients. I felt great afterwards. The class is offered on Thursdays so I guess I know where I will be on Thursday evenings. There are people there of all abilities; so you are not being judged by what you can and can't do. I will say going to two different MS functions this week has been a little strange for me. I keep feeling like I don't belong. Not because people are not welcoming but because it is just not a community I am used to. It is all new and not a place you ever want to be. It has been nice, though, meeting other people in the area with MS. I don't feel so isolated.

I have been sleeping much better at night without medication. I think working has helped with that. I still don't sleep through the night but am able to fall asleep easier. We did get a new mattress topper for our bed last week. It has made it much softer an has helped with the strain on my neck. I actually slept through the night a couple of days ago and it was very strange. I can't remember the last time I slept though the night before that. I hope I have more of them.

I started a journal a couple of days ago that I plan on writing in it daily for therapy. :) We will see if it helps. I hope you all have a great weekend. I am going to try and get some much needed cleaning done.



Amanda

More Pictures!

Tuesday September 22, 2009 - I will eventually get up to date with all of the pictures.:)

Emily's first day of school.

The four of us in front of the sandcastle at the coast.

The family at Snoopy's.

The family at Snoopy's.

What silly kids. They traded toys for the picture.

Emily

Dylan

Emily being silly.

Dylan's first day of school.

Fourth of July

Welcome Fall!

Tuesday September 22, 2009 - I am so glad it is raining and cooler outside. I can't wait to open all of the windows and let in some fresh air. I hope you all enjoy this great weather!

Amanda

Sunday September 20, 2009 - We had a good weekend. Jeff and Misty kept the kids last night and today so we could go to the wellness workshops today. THANK YOU Jeff and Misty!!!! I hope you are not too tired. ;) Jerry and I went out to the Oasis last night for dinner. I have lived here 11 years and had never been there. It was nice to go sit outside and not melt and not have three people trying to talk to you at once. The workshops went well today. It was nice to meet other people in the area with MS. I went to a workshop on improving your balance and on motivation. Ilearned that I really have bad balance. :( Jerry had a workshop just for care partners. He was able to talk to other people that have family members with MS. I think it was very helpful for him. I also found out that they have weekly yoga and pilates classes for people with MS at my neurologist's office. I will not be able to make the yoga class due to work, but am planning on signing up for the pilates class. I am excited that I can go and exercise out of the house and not worry about keeping up with everyone else in the room.

Well, I guess I am off to do my injection and get ready for another Monday. I hope everyone has a great week. I will update you Thursday on my appointment with my nuerologist.

Amanda

I Made It!

Saturday September 19, 2009 - I made it through the night.:) I woke up with achy legs but that could have been cause by anything. I will continue to double up on the Tylenol before my injections this week. All of my injections this week have to be done the nights before I have work so I really need to not have a reaction. I guess I should try to get some cleaning done. I have still not finished unpacking from our trip last weekend. I hope you all have a great weekend!

Amanda

Some Pictures:)

Silly 4th of July hats that the kids made.:)

Emily's recital

Dylan after his first soccer game.

Dylan playing his favorite position.

These pictures are from several months ago. I guess I need to download the rest. I am going to try to put more pictures on here of what we have going on. I am still trying to figure out this blog thing.;)

Crossing My Fingers!

Friday September 18, 2009 - I am crossing my fingers that I don't have a bad reaction to my medication tonight. On Wednesday I did my injection and then woke up around 2:30 Thursday morning with a migraine and was shivering uncontrollably. I hopped in the shower to try to warm up with no luck. Jerry came in and thought I was crazy because I was taking a shower at 3 in the morning. :) I got out and put on long pj's and Jerry wrapped me in in two heavy blankets. I moved to the sofa to try and get comfortable. I was shivering, thirsty, had an awful headache and very nauseous. I wanted to take more Tylenol but could not eat or drink because I was afraid it would come back up. So I was finally able to go back to sleep. When I woke after a short little nap I had finally stopped shivering but my head was pounding. It hurt so bad my ears felt like they were going to explode. Finally around 3:30 in the afternoon, after playing musical beds all day, my head was starting to feel better. I felt a little better today but still had a slight headache and was very tired and weak.

When I went to pull my next injection out for tonight I realized that the injection I took the other night was from a new box that I had not opened yet. I had an issue with getting that shipment of medication. It was shipped on a Friday and I was supposed to get it delivered Saturday. The medication did not show up until Monday. So I am guessing it sat in a truck or warehouse all weekend and the medication has to be kept at a certain temperature. UGH! So I just did my injection for tonight out of the same box. I am hoping that I don't wake up in the middle of the night again. I guess if I do I have a good idea as to why. I will let you know how it goes.

Also, my symptoms are not improving. My left hand and arm have a mind of their own. I have spasms and today I was trying to get something out of Jerry's hand and could not get my fingers to grip it. Very frustrating! My right foot still feels like it is asleep most of the time. Thankfully it has not gotten worse so I can still walk on it. I see the neurologist on Thursday. I am very anxious to see what he has to say.

Just a reminder that the Austin MS Walk is Saturday October 10th. I would love for you all to join me. You can go to my page at the link below. I hope you all have a great weekend!

Amanda

http://main.nationalmssociety.org/site/TRC/Walk/TXHWalkEvents?pg=peditor&fr_id=11720&px=6864140