Thursday October 15, 2009 - The car is fixed. It ended up being the battery. :( I think that is the most expensive battery I have ever had to get. I am just happy we have the car back.
Dylan is still a little congested in the mornings and evenings but otherwise is fine. Emily is still congested and runny. I have not decided if she will go to school tomorrow or not. I really need to go to work though. I have not had anymore fever or achiness; I just have a headache today. It seems like I have a slight headache almost everyday along with a stomache ache.
I hope everyone is staying healthy or getting better. Have a great weekend.
Amanda
Updates
Tuesday October 13, 2009 - I have a few updates so I thought I would share them. Dylan and Emily's vitamin D tests came back normal, so we will continue on their multi vitamin and try to get as much into their diets as we can. Emily had her appointment with the ophthalmologist today. Apparently, Emily has the dreaded inherited astigmatism as well. She could wear glasses now, but it is not necessary. He said she will have to wear glasses sooner than later and probably earlier than most kids but we will wait another year and check again.
I have been feeling a little better lately. I am still very tired but I am blaming the weather on that. ;) It is just too easy to stay in bed when it is cold and wet outside. I am still having some tingling in my feet and hands but it seems to not be as often. My vision has still not improved any. :( Some days I do notice that is it worse than others but I have gotten used to it for the most part. Other than that things are fairly normal around here. The kids are getting very excited about all the upcoming holidays and bouncing off the walls since they have not been able to go outside and play.
Today ended up being a bummer of a day. Dylan stayed home because of a cough and Emily has had a runny nose and cough. I started to feel bad so I took my temp and it was a little elevated. So we decided to go get dinner since no one felt like cooking. After dinner we stopped at Petsmart to get cat food and then the car would not start. ARGH! So we have gone from one car to no car. We had the car towed and had a neighbor come pick us up. THANK YOU Rita!!!!!! We are thinking the alternator went out and it is covered under the warranty. I am crossing my fingers. So to keep things as simple as possible Emily and I will be staying home tomorrow and Jerry has a co-worker that will give him a ride to and from work.
Hopefully we will get some good news tomorrow.
Amanda
I have been feeling a little better lately. I am still very tired but I am blaming the weather on that. ;) It is just too easy to stay in bed when it is cold and wet outside. I am still having some tingling in my feet and hands but it seems to not be as often. My vision has still not improved any. :( Some days I do notice that is it worse than others but I have gotten used to it for the most part. Other than that things are fairly normal around here. The kids are getting very excited about all the upcoming holidays and bouncing off the walls since they have not been able to go outside and play.
Today ended up being a bummer of a day. Dylan stayed home because of a cough and Emily has had a runny nose and cough. I started to feel bad so I took my temp and it was a little elevated. So we decided to go get dinner since no one felt like cooking. After dinner we stopped at Petsmart to get cat food and then the car would not start. ARGH! So we have gone from one car to no car. We had the car towed and had a neighbor come pick us up. THANK YOU Rita!!!!!! We are thinking the alternator went out and it is covered under the warranty. I am crossing my fingers. So to keep things as simple as possible Emily and I will be staying home tomorrow and Jerry has a co-worker that will give him a ride to and from work.
Hopefully we will get some good news tomorrow.
Amanda
MS Walk
Sunday October 11, 2009 - I want to thank all of you that have donated and all of those that came out to walk yesterday. We had a good time. It was a little cool but better than being 100 degrees outside.
If you want to donate it is not too late. You can still go to my page and donate online. Also, for those of you in the San Antonio area there is a walk at the AT&T center on March 6, 2010. You can sign up for the walk now. I am thinking of putting a team together and then you can sign up to be on my team. If anyone has a team name suggestion I would greatly appreciate it.
I hope you have all had a great weekend. The weather here has been nothing like they forecast but owell. I will take the rain and cooler temps over the heat any day. Have a great weekend.Amanda
Thank You BetaPlus, Again!
Monday October 5, 2009 - I hope everyone had a good wet weekend. It is nice to finally get some rain. I just wish it had come a few months ago when I was having to pay to water the grass. We had a great weekend. It was Jerry's' first weekend home in a long time. He has taken a leave of absence from his part time job. We tried to get a few things done around the house but played lazy at the same time. It was nice.
Today ended on a very good note. I was checking my email and had an email from BetaPlus. Due to the economy, they have decided that people that are on the $50 a month copay program or assistance program will be switched over to a $0 a month copay as long as you are on the medication. YIPPEEEE! So as long as I am on Betaseron I will not have to pay for it. I guess us switching insurance and not having them pay for it helped out in the end after all. So BetaPlus is sending the info to the pharmacy and I will not have to pay for my next shipment.
I sure hope the rest of the week is as good as today was. :) I hope you all have a great week.
*Reminder - MS Walk Austin is this Saturday. I hope to see you all there. Save The Date: MS Walk in San Antonio on March 6, 2010.
Amanda
Today ended on a very good note. I was checking my email and had an email from BetaPlus. Due to the economy, they have decided that people that are on the $50 a month copay program or assistance program will be switched over to a $0 a month copay as long as you are on the medication. YIPPEEEE! So as long as I am on Betaseron I will not have to pay for it. I guess us switching insurance and not having them pay for it helped out in the end after all. So BetaPlus is sending the info to the pharmacy and I will not have to pay for my next shipment.
I sure hope the rest of the week is as good as today was. :) I hope you all have a great week.
*Reminder - MS Walk Austin is this Saturday. I hope to see you all there. Save The Date: MS Walk in San Antonio on March 6, 2010.
Amanda
Busy Day
Thursday October 1, 2009 - Today was a very busy day for us. I had an appointment with the dermatologist just for a follow up - everything looks good. After that I took Emily in to have blood drawn. I have been putting it off for a week. She did GREAT! She didn't cry or anything; she just watched the guy stick her and take her blood. I think the kids seeing me stick myself with a needle has made them a little more tolerant of the doctor and shots and such. Then, Emily and I headed to the grocery store where we spent 2 hours shopping. UGH! That is what happens when you have not been shopping in about three weeks.
We got home, unloaded the groceries, ate lunch and started some laundry. Then I went an attempted to get new glasses with very little luck. Emily was tired, so she would not listen to anything I said. So of course as soon as we got in the car she fell asleep. When we got home it was time for Dylan to get home from school and then I took him to have his blood drawn. He did GREAT as well! I think it helped that Emily told him about it before hand and made it sound like no big deal; so he had to be the big boy since his sister did not cry.
Then we were off to pick Jerry up from work and try once more to get my glasses. I picked out the glasses I wanted and then went to sign in to wait for someone to help me. We waited for 45 minutes. Two people that came in after me were called first. I went to look at the sign in sheet and they had just completely skipped me. So we were there all that time for nothing. We got up and left. Very frustrating! Now we are trying to get homework and showers done. It is way past bedtime.
* I had Emily and Dylan's blood drawn to check their vitamin D levels. There are new studies that show vitamin D deficiencies may be a contributing factor to developing MS. You get vitamin D from sunshine and from milk. Nowadays kids are not outside as much and drink skim milk more; so they have lower levels of vitamin D. My neurologist highly recommended getting them checked so if it is low we can make sure we either spend more time outside or supplement them. Having a parent with MS makes them more likely to get MS and since Emily is female she is at greater risk. If there is anything I can do to make those risks lower I will do it.
I hope you have all had a great week and have a good weekend. Don't forget Austin MS walk is next Saturday in Round Rock. Hope to see you all there.
Amanda
We got home, unloaded the groceries, ate lunch and started some laundry. Then I went an attempted to get new glasses with very little luck. Emily was tired, so she would not listen to anything I said. So of course as soon as we got in the car she fell asleep. When we got home it was time for Dylan to get home from school and then I took him to have his blood drawn. He did GREAT as well! I think it helped that Emily told him about it before hand and made it sound like no big deal; so he had to be the big boy since his sister did not cry.
Then we were off to pick Jerry up from work and try once more to get my glasses. I picked out the glasses I wanted and then went to sign in to wait for someone to help me. We waited for 45 minutes. Two people that came in after me were called first. I went to look at the sign in sheet and they had just completely skipped me. So we were there all that time for nothing. We got up and left. Very frustrating! Now we are trying to get homework and showers done. It is way past bedtime.
* I had Emily and Dylan's blood drawn to check their vitamin D levels. There are new studies that show vitamin D deficiencies may be a contributing factor to developing MS. You get vitamin D from sunshine and from milk. Nowadays kids are not outside as much and drink skim milk more; so they have lower levels of vitamin D. My neurologist highly recommended getting them checked so if it is low we can make sure we either spend more time outside or supplement them. Having a parent with MS makes them more likely to get MS and since Emily is female she is at greater risk. If there is anything I can do to make those risks lower I will do it.
I hope you have all had a great week and have a good weekend. Don't forget Austin MS walk is next Saturday in Round Rock. Hope to see you all there.
Amanda
A Whole New World
Saturday September 26, 2009 - I had my appointment with the neurologist Thursday. It was fairly uneventful. He didn't really say much about my symptoms, but then again what can he do about them. He did give me some medication to give me more energy. I have been spending lots of time in bed sleeping. On days I don't work I will stay in bed either half the day or all day. I am thinking it is a combination of issues; lack of routine, the need to exercise and maybe a little depression. I am trying to change my routine and exercise more and see if that helps first. I hate taking lots of medication. I will go back for my three month check up in January.
On the subject of exercise, I went to a pilates class Thursday night that is for MS patients. I felt great afterwards. The class is offered on Thursdays so I guess I know where I will be on Thursday evenings. There are people there of all abilities; so you are not being judged by what you can and can't do. I will say going to two different MS functions this week has been a little strange for me. I keep feeling like I don't belong. Not because people are not welcoming but because it is just not a community I am used to. It is all new and not a place you ever want to be. It has been nice, though, meeting other people in the area with MS. I don't feel so isolated.
I have been sleeping much better at night without medication. I think working has helped with that. I still don't sleep through the night but am able to fall asleep easier. We did get a new mattress topper for our bed last week. It has made it much softer an has helped with the strain on my neck. I actually slept through the night a couple of days ago and it was very strange. I can't remember the last time I slept though the night before that. I hope I have more of them.
I started a journal a couple of days ago that I plan on writing in it daily for therapy. :) We will see if it helps. I hope you all have a great weekend. I am going to try and get some much needed cleaning done.
Amanda
On the subject of exercise, I went to a pilates class Thursday night that is for MS patients. I felt great afterwards. The class is offered on Thursdays so I guess I know where I will be on Thursday evenings. There are people there of all abilities; so you are not being judged by what you can and can't do. I will say going to two different MS functions this week has been a little strange for me. I keep feeling like I don't belong. Not because people are not welcoming but because it is just not a community I am used to. It is all new and not a place you ever want to be. It has been nice, though, meeting other people in the area with MS. I don't feel so isolated.
I have been sleeping much better at night without medication. I think working has helped with that. I still don't sleep through the night but am able to fall asleep easier. We did get a new mattress topper for our bed last week. It has made it much softer an has helped with the strain on my neck. I actually slept through the night a couple of days ago and it was very strange. I can't remember the last time I slept though the night before that. I hope I have more of them.
I started a journal a couple of days ago that I plan on writing in it daily for therapy. :) We will see if it helps. I hope you all have a great weekend. I am going to try and get some much needed cleaning done.
Amanda
More Pictures!
Tuesday September 22, 2009 - I will eventually get up to date with all of the pictures.:)
Emily's first day of school.
The four of us in front of the sandcastle at the coast.
The family at Snoopy's.
The family at Snoopy's.
What silly kids. They traded toys for the picture.
Emily
Dylan
Emily being silly.
Dylan's first day of school.
Fourth of July
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