MRI Done
Monday August 1, 2011 - Well, I made it through my MRI today. Hopefully, I will have the results in the next few days. I will share more info once I know anything. Hope everyone has a great day!
MRI on Monday
Thursday July 28, 2011 - Well, my MRI is scheduled for Monday. I can not wait until it is over. Thankfully we are only doing the brain again this time and not the spine. I am going to have to take a Xanax before. I hope that will help keep me calm. I will once again have an open MRI but it is still not open enough for me. I am so claustrophobic.
Need Sleep
Friday July 15, 2011 - Happy Friday! I am so glad it is Friday. It has been a rough week. I have had reactions to my medication twice this week and hoping to not have them tonight. On top of the shivering violently and feeling like I have been hit by a truck the next day I have insomnia. I have had two nights of about 2 hours of sleep. I lay in bed and I cannot go to sleep. I have also been having some of the same MS symptoms. The one that I can not ignore anymore is the constant muscle spasms in my left leg. It is so often now that I am in pain. I have also had a new symptom this week that I am choosing to ignore, the top of my right foot is numb.
I think the heat and lack of sleep is really starting to get to me. I am so sick of the heat. I cannot tell you the last time I spent anytime outside. The kids have even been complaining that they want to go out and play. It is hard for them to understand that I can't go outside when it is 100 degrees and play.
On a happier note....Emily and I are going to have a tea party tomorrow. She went to a tea party at a friend's house last week and we have been very excited to have our own. I have spent all week looking for a real tea set. I have found tons of children's tea sets and miniature tea sets that are reasonable in price but too small. We want a regular size floral (fancy) tea set. I did find some on eBay but they are way out of our price range. I ended up getting some mismatched pieces at Ross. I would still like to have a full set someday.
Dylan and Jerry are going to see Transformers tomorrow while Emily and I have our tea. I am not sure who is more excited about the movie. I am sure Dylan will come home and have to tell me all about the movie without pausing to catch his breath.
Well I guess that is all I have to report now. I hope everyone has a good weekend!
Amanda
I think the heat and lack of sleep is really starting to get to me. I am so sick of the heat. I cannot tell you the last time I spent anytime outside. The kids have even been complaining that they want to go out and play. It is hard for them to understand that I can't go outside when it is 100 degrees and play.
On a happier note....Emily and I are going to have a tea party tomorrow. She went to a tea party at a friend's house last week and we have been very excited to have our own. I have spent all week looking for a real tea set. I have found tons of children's tea sets and miniature tea sets that are reasonable in price but too small. We want a regular size floral (fancy) tea set. I did find some on eBay but they are way out of our price range. I ended up getting some mismatched pieces at Ross. I would still like to have a full set someday.
Dylan and Jerry are going to see Transformers tomorrow while Emily and I have our tea. I am not sure who is more excited about the movie. I am sure Dylan will come home and have to tell me all about the movie without pausing to catch his breath.
Well I guess that is all I have to report now. I hope everyone has a good weekend!
Amanda
Tired!!!
Thursday June 23, 2011 - Well we are all exhausted. Last night was the last night of VBS and we are beat. I am hoping for an early bed tonight. We had a good time but I am sure glad it is over. Now we have a couple of days to try to recoup before camp next week. I am sure the kids will be even more tired after next week. Bring on the crabby kids.
I am not feeling 100% today. My left leg is a little numb. I am hoping after some stretching and rest tonight it will be better tomorrow. The closer I get to my MRI the more nervous I get. I will not have it done until the end of next month but just having to think about it makes me crazy.
Well I think we are off to get snow cones to try to beat the heat. Have I mentioned I am ready for November?
Amanda
I am not feeling 100% today. My left leg is a little numb. I am hoping after some stretching and rest tonight it will be better tomorrow. The closer I get to my MRI the more nervous I get. I will not have it done until the end of next month but just having to think about it makes me crazy.
Well I think we are off to get snow cones to try to beat the heat. Have I mentioned I am ready for November?
Amanda
Stuff
Saturday June 11, 2011 - Wow it has been a very long time since my last post. I keep telling myself that I will be better about posting and then I am not. :( Well we have started our summer and I am ready for it to be over. The kids keep arguing and just can't seem to get along. I am keeping them busy but it does not seem to be helping. Maybe by the end of the summer I will have it all figured out.
Dylan is now officially a third grader and Emily is a kindergartner. I am not ready for either of them to be so BIG. Dylan is a little worried about third grade because he will now get letter grades. It will definitely be an adjustment for all of us. Emily I am afraid may be bored in Kinder. We have been working on worksheets and she did all the kinder worksheets last summer so I guess we will be moving onto 1st grade worksheets.
I had a great end to the school year and hated to see it end. I am, however, very excited about having my very own class from the beginning of the school year. I will have to post pictures when I start getting it put together.
Onto MS stuff.... I have still not been good about taking my medication so I had a nurse come out yesterday and do a retraining with us. I will basically start from scratch and hope I can stick with it. I am hoping that we learned a few tricks to keep it from hurting so bad. I really want to get better at taking it so I don't have to start taking the oral medication. I know you are thinking why would you rather stick yourself with a needle that take a pill. There are so many side effects with the new oral pills and I would have to spend tons of time under close watch. Some even in the hospital. Ugh! I don't have time for that.
My symptoms have not been any worse. Thankfully! I still have weakness in my left arm and leg, fatigue and muscle spasms in my legs and hands. I tend to ignore all my symptoms and just push through them. I don't have time to slow down!
I did see my ophthalmologist for a recheck recently and he said he was happy with my left eye. He thinks that what he is seeing is just the anatomy of my eye and not a cause for concern.
This summer I will have my annual MRI done and I also have to go in for another mammogram. Crossing my fingers that both come back normal with no changes. I will keep you posted.
I just registered for Walk MS Austin. It is on Saturday October 29, 2011. You can visit my page to make a donation or join me for the walk.
http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=6864140&pg=personal&fr_id=17354
I hope everyone is enjoying their summer and staying cool.
Amanda
Dylan is now officially a third grader and Emily is a kindergartner. I am not ready for either of them to be so BIG. Dylan is a little worried about third grade because he will now get letter grades. It will definitely be an adjustment for all of us. Emily I am afraid may be bored in Kinder. We have been working on worksheets and she did all the kinder worksheets last summer so I guess we will be moving onto 1st grade worksheets.
I had a great end to the school year and hated to see it end. I am, however, very excited about having my very own class from the beginning of the school year. I will have to post pictures when I start getting it put together.
Onto MS stuff.... I have still not been good about taking my medication so I had a nurse come out yesterday and do a retraining with us. I will basically start from scratch and hope I can stick with it. I am hoping that we learned a few tricks to keep it from hurting so bad. I really want to get better at taking it so I don't have to start taking the oral medication. I know you are thinking why would you rather stick yourself with a needle that take a pill. There are so many side effects with the new oral pills and I would have to spend tons of time under close watch. Some even in the hospital. Ugh! I don't have time for that.
My symptoms have not been any worse. Thankfully! I still have weakness in my left arm and leg, fatigue and muscle spasms in my legs and hands. I tend to ignore all my symptoms and just push through them. I don't have time to slow down!
I did see my ophthalmologist for a recheck recently and he said he was happy with my left eye. He thinks that what he is seeing is just the anatomy of my eye and not a cause for concern.
This summer I will have my annual MRI done and I also have to go in for another mammogram. Crossing my fingers that both come back normal with no changes. I will keep you posted.
I just registered for Walk MS Austin. It is on Saturday October 29, 2011. You can visit my page to make a donation or join me for the walk.
http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=6864140&pg=personal&fr_id=17354
I hope everyone is enjoying their summer and staying cool.
Amanda
Life has been busy to say the least
Friday March 25, 2011 - Life has been busy to say the least. I just finished my first week of teaching. It went great. I LOVE my job and look forward to going to work. I don't think I have ever had a job that I was excited to go to. It makes me a little sad that the school year will be over soon.
We started Dylan in a soccer academy and he likes it. I like it because he is actually learning skills. I think we will continue the academy until he is more comfortable on the field.
Emily wants to go back to dance class but we can not seem to fit it into our schedule right now. I am hoping that there is a class during the summer that will work for us.
I have been feeling okay. I am tired most days but go to bed early and just keep chugging along. I have been having a little more pain in my leg and arm this week but I am sure some of that is due to lack of sleep and added stress. I have had a lot of muscle spasms in my left leg over the last several weeks but I refuse to let it slow me down.
I found this link and thought I would share it.
http://www.youtube.com/v/UIBbgWabzUw?fs=1&hl=en_US
I hope everyone has a great weekend!
Amanda
We started Dylan in a soccer academy and he likes it. I like it because he is actually learning skills. I think we will continue the academy until he is more comfortable on the field.
Emily wants to go back to dance class but we can not seem to fit it into our schedule right now. I am hoping that there is a class during the summer that will work for us.
I have been feeling okay. I am tired most days but go to bed early and just keep chugging along. I have been having a little more pain in my leg and arm this week but I am sure some of that is due to lack of sleep and added stress. I have had a lot of muscle spasms in my left leg over the last several weeks but I refuse to let it slow me down.
I found this link and thought I would share it.
http://www.youtube.com/v/UIBbgWabzUw?fs=1&hl=en_US
I hope everyone has a great weekend!
Amanda
Monday March 7, 2011 - Well it has been awhile since my last post and I guess a few things have happened since. We had a snow day last month. The kids loved staying home and playing in the snow for about two seconds and then their hands got cold. Jerry and I didn't have much fun. Our outside pipes froze and the kitchen sink kept trying to freeze over. So we spent snow day 2011 trying to thaw pipes. I could never live up north.
I went in for my annual exam with my lady doctor and pointed out a lump I found on my breast several months before. I was then sent for a mammogram and ultrasound. I don't know if I was more nervous about having the mammogram done or the results. Either way everything turned out fine. I was told to come back if it changes.
I went in for my six month follow up with my neurologist a couple of weeks ago. He was happy that I seem to be doing well but not happy that I have not stayed on top of my medication. He was about to switch me to the oral drug but I told him no. There are just too many side affects. So he scared me and told me that I may be doing fine now but when I am 50 we will have big problems. We are still trying to figure out the best way for me to remember and want to take my medication. It is just so painful!
I have been working more than two days a week for awhile because we have had so many teachers out that I have been subbing a lot. Last week I got a call from my boss offering me a teaching position for the remainder of the school year. One of our teachers has to start working full time for her husband so I will be taking her position. This will give me a chance to get used to teaching and working five days a week for next school year. I am sad that this teacher has to leave but very excited for the opportunity.
I am looking forward to spring for the warmer weather but I am not looking forward to the warmer weather because it make me sooooooooo tired. I hope everyone is enjoying the weather! Hopefully it will not be as long until my next post.
Amanda
I went in for my annual exam with my lady doctor and pointed out a lump I found on my breast several months before. I was then sent for a mammogram and ultrasound. I don't know if I was more nervous about having the mammogram done or the results. Either way everything turned out fine. I was told to come back if it changes.
I went in for my six month follow up with my neurologist a couple of weeks ago. He was happy that I seem to be doing well but not happy that I have not stayed on top of my medication. He was about to switch me to the oral drug but I told him no. There are just too many side affects. So he scared me and told me that I may be doing fine now but when I am 50 we will have big problems. We are still trying to figure out the best way for me to remember and want to take my medication. It is just so painful!
I have been working more than two days a week for awhile because we have had so many teachers out that I have been subbing a lot. Last week I got a call from my boss offering me a teaching position for the remainder of the school year. One of our teachers has to start working full time for her husband so I will be taking her position. This will give me a chance to get used to teaching and working five days a week for next school year. I am sad that this teacher has to leave but very excited for the opportunity.
I am looking forward to spring for the warmer weather but I am not looking forward to the warmer weather because it make me sooooooooo tired. I hope everyone is enjoying the weather! Hopefully it will not be as long until my next post.
Amanda
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