Snow pictures

Monday August 16, 2010 - I hope everyone is doing well. Jerry and I had a quiet weekend without the kids. It was nice but I think we are ready for the kids to be back home.

I will finally start posting some of the pictures from the last several months that I was not able to.

Here are some pictures from February. These were taken the week we moved out of our house. It snowed all day long. The kids had fun until their hands started to get cold. I had already packed gloves and warmer clothes. Texas weather is so weird.

Picture

Tuesday August 10, 2010 - So my cell phone does not take great pictures, but here it is. I took this right after we left the store. It is so funny how Dylan's behavior has changed since Saturday. He has been very polite and respectful. He says he feels smarter. Weird how glasses can change his personality. We will see how long that lasts.

This heat is killing me. I have been so tired the last two days I can hardly get out of bed. Dylan and I had to have another talk today because he asked me why I have been sleeping so much lately. I also used my Wii Fit the other day and got a good workout that I am not used to so I am sure that had an impact.

I am trying to get everyone on a normal school routine. So far it is not working very well. I am trying to get the kids in bed by 8 and up at 6. We have gotten them to bed around 8 a couple of times but 6 am has not happened yet. Hopefully, in two weeks it will not be an issue.

Internet Finally!!!!!!

Monday August 9, 2010 - We finally have our internet hooked up so hopefully I can get my blog updated and upload some photos from the last six months.

I have been feeling okay. I went to the doctor and he thinks I am having anxiety attacks. We are running some blood tests and trying some temporary meds. I will go back to see him on Thursday to see what we will do long term. I have not felt comfortable driving very far because it seems like every time I get behind the wheel I start with another attack. I guess I am just crazy.

Well, we took Dylan in for his annual eye exam and he now needs glasses. I have never seen a child so excited to wear glasses. I will post a picture soon. Now Emily is wanting hers. I am sure she will not be far behind. Poor kids are getting bad genes I guess.

I guess that is all for now. I will post some pictures tomorrow and start posting some pictures that I have wanted to post since February.

Amanda

Stress?

Wednesday July 28, 2010 – It has been a crazy week that only seems to be getting crazier. I have been really tired and not sleeping and starting to have more spasms and weakness in my left arm and leg. My mood has not been great either. Last night I decided to finally take a sleeping pill. Shortly after taking it I had a wave of heat take over my entire body and then my heart started racing and I was having trouble breathing. It was just like the episode back in April when I ended up in the ER. I tried really hard to calm myself. I was able to keep it under control enough to not have to go to the ER but I am still not feeling very well. I will go see the doctor tomorrow to figure out what the heck is going on. I will keep you posted.

Amanda

Results

Saturday July 17, 2010 - Well, my white blood count and liver are normal. So my body is tolerating my meds. Thank Goodness. The last thing I want to do is have to change my medication right now.

We have been doing well. We are enjoying the summer and not getting much accomplished on the house but we really want to get it done because we are so close. The kids have been spending a lot of time outside with the other kids on our street and they are having the summer of their lives. Jerry and I are enjoying it as well. Once school starts I think we are all going to have a rude awakening. We have been so out of our routine.

The next month I think is going to be very busy. I am organizing a block party, we have many school functions coming up with the opening of our brand new school and then just the craziness of getting ready for school to start. With all of that I really need to start looking for a job. I am thinking about doing in home child care again but not sure I would find anyone willing to drop their child off at my house in the condition it is in right now. I have thought about retail but one I am not sure I would find someone willing to let me work the hours I can work and I also really want to work with kids again.

Well, I guess that is enough babbling for now. I hope you are all staying cool.

Amanda

Very Good

Thursday July 8, 2010 - That is what my neurologist said today. He was very happy with my MRI. I have no new lesions, no black holes and my existing lesions have not grown. This means that my MS is stable. I will continue on my medication and hope that it will be a very long time before another exacerbation.

The first oral medication will be out in September for disease modification, but I will not be one of the patients that take the oral. For one, my medication is working, so we will not change and also the new drugs have a very long list of side effects.

My Dr. also asked me how the open MRI went and I told him that I was still Closter phobic and if the test had been any longer I would have lost it. He did mention that I can start taking something before my MRI’s to relax.

I did have to get blood work done today. There is one lady there that I have had before that is able to get a needle in my vein on the first try. I was really hoping I would get her and I did. So I only got stuck once with a small needle today. Yeah!!!!!

Well I hope everyone is doing well. Enjoy your weekend.

Amanda

I Need A Vacation

Friday July 2, 2010 – Things are not really that bad but I would like to have an uneventful week.

I got a call from my neurologist’s office yesterday and they said my MRI was good. I am not sure what exactly that means. I will find out for sure on Thursday. Dylan was sent home from camp yesterday with pink eye. I had to take him to the Dr. and get him meds. This is the first time any of us have had pink eye. Apparently pink eye and ear issues are going around. The pharmacists that I LOVE at our HEB said that she had filled nothing but ear and eye drops all day. Thankfully we have met our medication deductable so I did not have to pay the $70 for a very small bottle of drops. I don’t like to talk $ figures on here but it just blows me away at how much $$$$$$$$$ we have had to pay this year so far in medical bills. I did call insurance the other day to see how much more we have to shell out this year. We are close to meeting the out of pocket for the family and it is a LOT of money. OUCH! Not to mention the monthly premiums. Okay enough of me ranting.

I also called car insurance to find out what was going on with that. So since they decided that the other lady’s story did not add up but they felt that they could not say it was her fault it is a wash. It is if I never filed a claim. We both have to pay for our own damages out of our pockets. That is better than the claim being on my policy but not the outcome I had hoped for. So now we have to figure out what it will cost to fix my car and figure out how to pay for it along with the medical bills from Dylan’s surgery, my ER visit and my MRI. UGH!!!!! I really need to find a job.

I am hoping since it is raining and will be tomorrow also that I can get some painting done. I think I am going to start on our study/library. I will be so happy when all the walls are painted. I am so tired of looking at walls that are painted colors I didn’t pick and can’t stand. It would be one thing if they were a neutral color but no they had to be orange, pink, dark blue and several colors in between.

Now that I feel like I have been nothing but a downer I will get back to moving boxes so I can paint. Have a great weekend.

Amanda