Austin MS Walk

Thursday October 28, 2010 - Sunday was the Austin MS walk. Thank you to my parents and mother-in-law for coming and walking with us.

You can still donate until November 24th. Just visit the link. http://main.nationalmssociety.org/site/TRC/Walk/TXHWalkEvents?pg=peditor&fr_id=14611&px=6864140

No amount is too small. The money that is raised helps with research and also helps provide people that need assistance with equipment and other necessities.

Jerry and I went to a dinner on Tuesday evening where my neurologist was speaking. We learned some new things about research and about medications. Some things were good and some where not so good. The one thing that I am fearing right now is the cost of medication. I have been on a program with no copay for my medication because my insurance will not cover it but I am not sure how much longer that will last. All MS medication is very expensive. My medication costs about $35,000 a year and the new oral drug that came out is $50,000 a year. We are not sure what will happen when insurance and drug companies decide not to help pay for these anymore. I am not sure about you but I can't afford $35,000 a year for one medication on top of all the other medical expenses.

I hope everyone is enjoying some fall weather. Have a great weekend!

Amanda

Happy Friday

Friday October 22, 2010 - I hope everyone has been doing well. We have been busy here with school, work and fall activities. We went to a pumpkin patch at the beginning of the month and the weather was perfect. We all had a good time.

I have been feeling good most days. I am still tired and some days just have to take a two or three hour nap to make it through the day. I have started medication for my panic attacks and they have stopped. Thank God!!!! Some days I was having two or three attacks a day and I have not had one in weeks. It feels great to not have that feeling.

The Austin MS walk is this Sunday and the kids are looking forward to the food. ;) Leave it to the kids to only care about food.

Dylan and I talk about MS occasionally and it is so hard to explain to him what it means to have MS and what it really is. We have been talking about it for over a year and the idea of having something that does not go away and that you can't give to someone else by coughing on them is so hard for him to understand. It is also very frustrating for the kids for me to have to rest all the time. They always complain that I am always tired. I feel so bad that I don't have the energy to do as much as I would like and that they have to suffer because of that.

Okay, I guess enough rambling. I hope everyone has a great weekend.

Amanda