Round and Round

Monday, March 5, 2012 -   Well the good news is that my MRI came back stable.  Yeah!  The frustrating thing has been getting started on medication.  My doctors office sent over the prescription order over a week ago.  I thought they got insurance figured out and the company put me on their copay program because my total for meds was over $6,800.  Well I should have known it would not be that easy.  The pharmacy called me last Thursday to place the order and I was still going to owe over $2,800.  I told them that was not correct so they said that it needed to be rerun through my insurance and they would call me back.  I had not heard from them by today so I called them back.  Now they said I owed over $2,600.  GRRRRRR!  So I called the company with the medication and they said that was not correct so while I held on the phone they called the pharmacy and got it straighted out.  In the end the company will only cover $2,500.  So much for the copay assistance program.  Of course they did not offer me any other option.  So I asked if they had another assistance program (I already knew they did) and she said yes but I would have to qualify.  Well guess what we qualify.  It helps to be poor.  :(  Yeah!  Now to wait for the four page application and then send it back to wait another few days and then maybe I can think about having my medication.  Lets see how may road blocks I run into this time.

Stuff

Sunday, February 19, 2012 - Wow it has been a very long time since my last post.  We have just been doing the school and work thing.  Dylan has had a few struggles this school year that we are still trying to sort through but his grades are good.  We have been dealing with peer issues and some ADD issues.  These are things we have been dealing with since kinder but I am always told there is not a problem but this year I finally had a teacher come to me and tell me we have a problem.  We are trying to figure out the best way to help him.
Emily is doing very well in school.  I think she may pass Dylan in reading levels soon.  We have had her tested for Talented and Gifted.  We will not know any results until May.  Learning just comes very naturally to her. 

Things have been going very well for me at work.  I still LOVE my job. 

As for MS well..... Not so good lately.  From my past posts you all know I have been off of medication for about 5 or 6 months.  Not because I didn't need to be on it but because I am selfish!  I hate taking my medication.  Well, I will no longer have that option.  I have been having MS symptoms that I can no longer ignore.  I went to my ophthalmologist and he did his annual picture of my optic nerves and found changes in my left eye now.  His report had not made it to my neurologist by the time I went in for that appointment this past week.  But after telling my doctor my symptoms he is fairly convinced that my MRI will show progression.  I will be going in for another MRI tomorrow afternoon to see what is going on in my brain.  I will then start medication after that.

We will have to start from square one with medication again.  This is a different medication than the one I was on before.  It is not supposed to have the side effects but it is an injection everyday.  Under our insurance they will cover $600 a month but we have to pay $2,600 a month for the medication.  So once again we are going to have to pull some stings to get my medication paid for.  There is no way we can pay $2,600 a month.  Not even for one month. 

I really need to learn how to post when things are good not just when there is new.  :(  I will post as soon as I have my results back from my MRI. 

I HATE MS!!!!!!!