Saturday July 17, 2010 - Well, my white blood count and liver are normal. So my body is tolerating my meds. Thank Goodness. The last thing I want to do is have to change my medication right now.
We have been doing well. We are enjoying the summer and not getting much accomplished on the house but we really want to get it done because we are so close. The kids have been spending a lot of time outside with the other kids on our street and they are having the summer of their lives. Jerry and I are enjoying it as well. Once school starts I think we are all going to have a rude awakening. We have been so out of our routine.
The next month I think is going to be very busy. I am organizing a block party, we have many school functions coming up with the opening of our brand new school and then just the craziness of getting ready for school to start. With all of that I really need to start looking for a job. I am thinking about doing in home child care again but not sure I would find anyone willing to drop their child off at my house in the condition it is in right now. I have thought about retail but one I am not sure I would find someone willing to let me work the hours I can work and I also really want to work with kids again.
Well, I guess that is enough babbling for now. I hope you are all staying cool.
Amanda
Very Good
Thursday July 8, 2010 - That is what my neurologist said today. He was very happy with my MRI. I have no new lesions, no black holes and my existing lesions have not grown. This means that my MS is stable. I will continue on my medication and hope that it will be a very long time before another exacerbation.
The first oral medication will be out in September for disease modification, but I will not be one of the patients that take the oral. For one, my medication is working, so we will not change and also the new drugs have a very long list of side effects.
My Dr. also asked me how the open MRI went and I told him that I was still Closter phobic and if the test had been any longer I would have lost it. He did mention that I can start taking something before my MRI’s to relax.
I did have to get blood work done today. There is one lady there that I have had before that is able to get a needle in my vein on the first try. I was really hoping I would get her and I did. So I only got stuck once with a small needle today. Yeah!!!!!
Well I hope everyone is doing well. Enjoy your weekend.
Amanda
The first oral medication will be out in September for disease modification, but I will not be one of the patients that take the oral. For one, my medication is working, so we will not change and also the new drugs have a very long list of side effects.
My Dr. also asked me how the open MRI went and I told him that I was still Closter phobic and if the test had been any longer I would have lost it. He did mention that I can start taking something before my MRI’s to relax.
I did have to get blood work done today. There is one lady there that I have had before that is able to get a needle in my vein on the first try. I was really hoping I would get her and I did. So I only got stuck once with a small needle today. Yeah!!!!!
Well I hope everyone is doing well. Enjoy your weekend.
Amanda
I Need A Vacation
Friday July 2, 2010 – Things are not really that bad but I would like to have an uneventful week.
I got a call from my neurologist’s office yesterday and they said my MRI was good. I am not sure what exactly that means. I will find out for sure on Thursday. Dylan was sent home from camp yesterday with pink eye. I had to take him to the Dr. and get him meds. This is the first time any of us have had pink eye. Apparently pink eye and ear issues are going around. The pharmacists that I LOVE at our HEB said that she had filled nothing but ear and eye drops all day. Thankfully we have met our medication deductable so I did not have to pay the $70 for a very small bottle of drops. I don’t like to talk $ figures on here but it just blows me away at how much $$$$$$$$$ we have had to pay this year so far in medical bills. I did call insurance the other day to see how much more we have to shell out this year. We are close to meeting the out of pocket for the family and it is a LOT of money. OUCH! Not to mention the monthly premiums. Okay enough of me ranting.
I also called car insurance to find out what was going on with that. So since they decided that the other lady’s story did not add up but they felt that they could not say it was her fault it is a wash. It is if I never filed a claim. We both have to pay for our own damages out of our pockets. That is better than the claim being on my policy but not the outcome I had hoped for. So now we have to figure out what it will cost to fix my car and figure out how to pay for it along with the medical bills from Dylan’s surgery, my ER visit and my MRI. UGH!!!!! I really need to find a job.
I am hoping since it is raining and will be tomorrow also that I can get some painting done. I think I am going to start on our study/library. I will be so happy when all the walls are painted. I am so tired of looking at walls that are painted colors I didn’t pick and can’t stand. It would be one thing if they were a neutral color but no they had to be orange, pink, dark blue and several colors in between.
Now that I feel like I have been nothing but a downer I will get back to moving boxes so I can paint. Have a great weekend.
Amanda
I got a call from my neurologist’s office yesterday and they said my MRI was good. I am not sure what exactly that means. I will find out for sure on Thursday. Dylan was sent home from camp yesterday with pink eye. I had to take him to the Dr. and get him meds. This is the first time any of us have had pink eye. Apparently pink eye and ear issues are going around. The pharmacists that I LOVE at our HEB said that she had filled nothing but ear and eye drops all day. Thankfully we have met our medication deductable so I did not have to pay the $70 for a very small bottle of drops. I don’t like to talk $ figures on here but it just blows me away at how much $$$$$$$$$ we have had to pay this year so far in medical bills. I did call insurance the other day to see how much more we have to shell out this year. We are close to meeting the out of pocket for the family and it is a LOT of money. OUCH! Not to mention the monthly premiums. Okay enough of me ranting.
I also called car insurance to find out what was going on with that. So since they decided that the other lady’s story did not add up but they felt that they could not say it was her fault it is a wash. It is if I never filed a claim. We both have to pay for our own damages out of our pockets. That is better than the claim being on my policy but not the outcome I had hoped for. So now we have to figure out what it will cost to fix my car and figure out how to pay for it along with the medical bills from Dylan’s surgery, my ER visit and my MRI. UGH!!!!! I really need to find a job.
I am hoping since it is raining and will be tomorrow also that I can get some painting done. I think I am going to start on our study/library. I will be so happy when all the walls are painted. I am so tired of looking at walls that are painted colors I didn’t pick and can’t stand. It would be one thing if they were a neutral color but no they had to be orange, pink, dark blue and several colors in between.
Now that I feel like I have been nothing but a downer I will get back to moving boxes so I can paint. Have a great weekend.
Amanda
MRI Done
Monday June 28, 2010 - Well my MRI is done. They were actually able to stick me one time with the needle to get the IV line for the contrast. I got in the room and lay down and as soon as the lady pushed me into the machine I panicked. I asked her to get Jerry and I tried to calm myself. I was able to make it through the entire test. It only took 30 minutes. Had it taken any longer I don’t think I would have made it. Next MRI I think I will be asking for sedation. I am just not able to be inside something and pushed down to a table.
Now I just have to wait. I will not find out the results until next Thursday at my appointment.
Now I just have to wait. I will not find out the results until next Thursday at my appointment.
Stuff
Sunday June 27, 2010 - We are still waiting on insurance to call and let me know their decision again. See if I will be getting my car fixed or not. We have been doing laundry and dishes and trying to get the house picked up this weekend. We did go to our neighbors baseball game yesterday and the kids were so bored. I wanted to watch but they made it almost impossible to watch with them whining and complaining the entire time. We are supposed to go to a Round Rock Express game in a couple of weeks I am hoping that they do better there.
The kids go to camp this week so I am hoping that I can get the house cleaned and I want to start painting another room. We have not really been working on the house much the last several weeks. Jerry and I are so tired and need a break. I think I am ready to get geared up again. I really want to get our library painted and get some book shelves so I can get the last 13 boxes unpacked. Also, once we get the library done we can start working on the kitchen. The kitchen is going to take a LOT of work. We want to replace the appliances, sink, faucet, lights, refinish the cabinets and paint.
Once we get our internet hooked up I will post pictures of what we have done so far in the house. We did not take before pictures because like Jerry says “We don’t want reminders of what it looked like before.” We have had to do a lot of work and still have tons to do inside and out. Once we get it all done I think we will love it.
On days when I hate this house it helps to have neighbors that we like so much that make it all worth it. I really don’t think we could have asked for better neighbors. At our last house we had great neighbors next door but at this house we have great neighbors up and down both sides of the street.
Well, I am off to keep myself busy so I don’t think about tomorrow.
Amanda
The kids go to camp this week so I am hoping that I can get the house cleaned and I want to start painting another room. We have not really been working on the house much the last several weeks. Jerry and I are so tired and need a break. I think I am ready to get geared up again. I really want to get our library painted and get some book shelves so I can get the last 13 boxes unpacked. Also, once we get the library done we can start working on the kitchen. The kitchen is going to take a LOT of work. We want to replace the appliances, sink, faucet, lights, refinish the cabinets and paint.
Once we get our internet hooked up I will post pictures of what we have done so far in the house. We did not take before pictures because like Jerry says “We don’t want reminders of what it looked like before.” We have had to do a lot of work and still have tons to do inside and out. Once we get it all done I think we will love it.
On days when I hate this house it helps to have neighbors that we like so much that make it all worth it. I really don’t think we could have asked for better neighbors. At our last house we had great neighbors next door but at this house we have great neighbors up and down both sides of the street.
Well, I am off to keep myself busy so I don’t think about tomorrow.
Amanda
What a Week
Friday June 25, 2010 – It has been one of those weeks. We got back home from San Antonio on Sunday so the kids could go to VBS. This is the third year Emily has tried to go to this VBS. We made it through the first day and that was all. She did not want to go back and I was not going to force her because the last two years we got a call asking us to come get her because she was crying. She told me on Wednesday that she will go next year. We will see.
Sunday evening our dog started vomiting and got very sick. The last time I took him in for vomiting it cost me almost $800. I don’t have $800 to take him in so I nursed him back. He finally started to act like himself yesterday.
On top of that I was in a car accident on Tuesday in the grocery store parking lot. I was parked with my door open and a lady pulled into the spot next to me and hit my door. She immediately apologized and said she didn’t see my door. She did not want to claim it on her insurance because she didn’t want he rates to go up. I ended up asking for her insurance just in case. At the time the damage to my car was very minimal. Later that day I noticed my door not closing properly so I called and made a claim. Well after going back and forth with insurance they called me yesterday to tell me that the accident was my fault. WHAT!? So needless to say we are fighting that. Apparently the lady that hit me changed her story. Even though the damage to my car does not fit her story they sided with her. ARGH!
I am also nervous about Monday’s MRI. I am really hoping that it being an open MRI helps. We shall see.
I hope everyone has had a better week than we have and has a great weekend.
Amanda
Sunday evening our dog started vomiting and got very sick. The last time I took him in for vomiting it cost me almost $800. I don’t have $800 to take him in so I nursed him back. He finally started to act like himself yesterday.
On top of that I was in a car accident on Tuesday in the grocery store parking lot. I was parked with my door open and a lady pulled into the spot next to me and hit my door. She immediately apologized and said she didn’t see my door. She did not want to claim it on her insurance because she didn’t want he rates to go up. I ended up asking for her insurance just in case. At the time the damage to my car was very minimal. Later that day I noticed my door not closing properly so I called and made a claim. Well after going back and forth with insurance they called me yesterday to tell me that the accident was my fault. WHAT!? So needless to say we are fighting that. Apparently the lady that hit me changed her story. Even though the damage to my car does not fit her story they sided with her. ARGH!
I am also nervous about Monday’s MRI. I am really hoping that it being an open MRI helps. We shall see.
I hope everyone has had a better week than we have and has a great weekend.
Amanda
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