Saturday September 26, 2009 - I had my appointment with the neurologist Thursday. It was fairly uneventful. He didn't really say much about my symptoms, but then again what can he do about them. He did give me some medication to give me more energy. I have been spending lots of time in bed sleeping. On days I don't work I will stay in bed either half the day or all day. I am thinking it is a combination of issues; lack of routine, the need to exercise and maybe a little depression. I am trying to change my routine and exercise more and see if that helps first. I hate taking lots of medication. I will go back for my three month check up in January.
On the subject of exercise, I went to a pilates class Thursday night that is for MS patients. I felt great afterwards. The class is offered on Thursdays so I guess I know where I will be on Thursday evenings. There are people there of all abilities; so you are not being judged by what you can and can't do. I will say going to two different MS functions this week has been a little strange for me. I keep feeling like I don't belong. Not because people are not welcoming but because it is just not a community I am used to. It is all new and not a place you ever want to be. It has been nice, though, meeting other people in the area with MS. I don't feel so isolated.
I have been sleeping much better at night without medication. I think working has helped with that. I still don't sleep through the night but am able to fall asleep easier. We did get a new mattress topper for our bed last week. It has made it much softer an has helped with the strain on my neck. I actually slept through the night a couple of days ago and it was very strange. I can't remember the last time I slept though the night before that. I hope I have more of them.
I started a journal a couple of days ago that I plan on writing in it daily for therapy. :) We will see if it helps. I hope you all have a great weekend. I am going to try and get some much needed cleaning done.
Amanda
More Pictures!
Tuesday September 22, 2009 - I will eventually get up to date with all of the pictures.:)
Emily's first day of school.
The four of us in front of the sandcastle at the coast.
The family at Snoopy's.
The family at Snoopy's.
What silly kids. They traded toys for the picture.
Emily
Dylan
Emily being silly.
Dylan's first day of school.
Fourth of July
Welcome Fall!
Tuesday September 22, 2009 - I am so glad it is raining and cooler outside. I can't wait to open all of the windows and let in some fresh air. I hope you all enjoy this great weather!
Amanda
Amanda
Sunday September 20, 2009 - We had a good weekend. Jeff and Misty kept the kids last night and today so we could go to the wellness workshops today. THANK YOU Jeff and Misty!!!! I hope you are not too tired. ;) Jerry and I went out to the Oasis last night for dinner. I have lived here 11 years and had never been there. It was nice to go sit outside and not melt and not have three people trying to talk to you at once. The workshops went well today. It was nice to meet other people in the area with MS. I went to a workshop on improving your balance and on motivation. Ilearned that I really have bad balance. :( Jerry had a workshop just for care partners. He was able to talk to other people that have family members with MS. I think it was very helpful for him. I also found out that they have weekly yoga and pilates classes for people with MS at my neurologist's office. I will not be able to make the yoga class due to work, but am planning on signing up for the pilates class. I am excited that I can go and exercise out of the house and not worry about keeping up with everyone else in the room.
Well, I guess I am off to do my injection and get ready for another Monday. I hope everyone has a great week. I will update you Thursday on my appointment with my nuerologist.
Amanda
Well, I guess I am off to do my injection and get ready for another Monday. I hope everyone has a great week. I will update you Thursday on my appointment with my nuerologist.
Amanda
I Made It!
Saturday September 19, 2009 - I made it through the night.:) I woke up with achy legs but that could have been cause by anything. I will continue to double up on the Tylenol before my injections this week. All of my injections this week have to be done the nights before I have work so I really need to not have a reaction. I guess I should try to get some cleaning done. I have still not finished unpacking from our trip last weekend. I hope you all have a great weekend!
Amanda
Amanda
Some Pictures:)
Silly 4th of July hats that the kids made.:)
Emily's recital
Dylan after his first soccer game.
Dylan playing his favorite position.These pictures are from several months ago. I guess I need to download the rest. I am going to try to put more pictures on here of what we have going on. I am still trying to figure out this blog thing.;)
Crossing My Fingers!
Friday September 18, 2009 - I am crossing my fingers that I don't have a bad reaction to my medication tonight. On Wednesday I did my injection and then woke up around 2:30 Thursday morning with a migraine and was shivering uncontrollably. I hopped in the shower to try to warm up with no luck. Jerry came in and thought I was crazy because I was taking a shower at 3 in the morning. :) I got out and put on long pj's and Jerry wrapped me in in two heavy blankets. I moved to the sofa to try and get comfortable. I was shivering, thirsty, had an awful headache and very nauseous. I wanted to take more Tylenol but could not eat or drink because I was afraid it would come back up. So I was finally able to go back to sleep. When I woke after a short little nap I had finally stopped shivering but my head was pounding. It hurt so bad my ears felt like they were going to explode. Finally around 3:30 in the afternoon, after playing musical beds all day, my head was starting to feel better. I felt a little better today but still had a slight headache and was very tired and weak.
When I went to pull my next injection out for tonight I realized that the injection I took the other night was from a new box that I had not opened yet. I had an issue with getting that shipment of medication. It was shipped on a Friday and I was supposed to get it delivered Saturday. The medication did not show up until Monday. So I am guessing it sat in a truck or warehouse all weekend and the medication has to be kept at a certain temperature. UGH! So I just did my injection for tonight out of the same box. I am hoping that I don't wake up in the middle of the night again. I guess if I do I have a good idea as to why. I will let you know how it goes.
Also, my symptoms are not improving. My left hand and arm have a mind of their own. I have spasms and today I was trying to get something out of Jerry's hand and could not get my fingers to grip it. Very frustrating! My right foot still feels like it is asleep most of the time. Thankfully it has not gotten worse so I can still walk on it. I see the neurologist on Thursday. I am very anxious to see what he has to say.
Just a reminder that the Austin MS Walk is Saturday October 10th. I would love for you all to join me. You can go to my page at the link below. I hope you all have a great weekend!
Amanda
http://main.nationalmssociety.org/site/TRC/Walk/TXHWalkEvents?pg=peditor&fr_id=11720&px=6864140
When I went to pull my next injection out for tonight I realized that the injection I took the other night was from a new box that I had not opened yet. I had an issue with getting that shipment of medication. It was shipped on a Friday and I was supposed to get it delivered Saturday. The medication did not show up until Monday. So I am guessing it sat in a truck or warehouse all weekend and the medication has to be kept at a certain temperature. UGH! So I just did my injection for tonight out of the same box. I am hoping that I don't wake up in the middle of the night again. I guess if I do I have a good idea as to why. I will let you know how it goes.
Also, my symptoms are not improving. My left hand and arm have a mind of their own. I have spasms and today I was trying to get something out of Jerry's hand and could not get my fingers to grip it. Very frustrating! My right foot still feels like it is asleep most of the time. Thankfully it has not gotten worse so I can still walk on it. I see the neurologist on Thursday. I am very anxious to see what he has to say.
Just a reminder that the Austin MS Walk is Saturday October 10th. I would love for you all to join me. You can go to my page at the link below. I hope you all have a great weekend!
Amanda
http://main.nationalmssociety.org/site/TRC/Walk/TXHWalkEvents?pg=peditor&fr_id=11720&px=6864140
Monday September 14, 2009 - Well I have not posted in a while because we have been busy. Labor day weekend Jerry had to work everyday and I spent the weekend washing curtains and steam cleaning carpets. I figured since I am not watching kids I would do a deep cleaning on the house. Of course the house is due for cleaning again. It never ends.
Emily started school last week and really seems to like it. Today was her third day and she asked this evening if she could go to school tomorrow. :) She has a few of the same kids in her class from last year but is also making some new friends. I think she is going to have a great year.
This past weekend we went to the coast for a very quick trip with my parents, Jerry's mom and brother. We had a good time but wished we stayed a little longer. I think we are all worn out. I still have to unpack and do some laundry.
I am now on my third week at work and it is working out well. I am learning to do several different things and I brought work home today. I am really liking my schedule. It is nice to be able to pick Emily up from school and be with her two days a week. I also get to take my naps. ;)
I have been feeling worse the last week. I am having more tingling in my arms and legs. One day last week while I was filing my finger stopped moving. It was a little scary but did not last long. My left hand has not been working the way it should and my left leg has been feeling very heavy. I actually fell this weekend because I put my left leg down on the floor and there was no feeling so I went straight to the floor. I will see the neurologist next week, so we will see what he says about my symptoms.
This Sunday Jerry and I are going to a conference in Austin to learn about a MS wellness program. I am curious to get more information and find some local programs and support groups.
I hope everyone is getting some much needed rain and stays dry. Have a great week!
Amanda
Emily started school last week and really seems to like it. Today was her third day and she asked this evening if she could go to school tomorrow. :) She has a few of the same kids in her class from last year but is also making some new friends. I think she is going to have a great year.
This past weekend we went to the coast for a very quick trip with my parents, Jerry's mom and brother. We had a good time but wished we stayed a little longer. I think we are all worn out. I still have to unpack and do some laundry.
I am now on my third week at work and it is working out well. I am learning to do several different things and I brought work home today. I am really liking my schedule. It is nice to be able to pick Emily up from school and be with her two days a week. I also get to take my naps. ;)
I have been feeling worse the last week. I am having more tingling in my arms and legs. One day last week while I was filing my finger stopped moving. It was a little scary but did not last long. My left hand has not been working the way it should and my left leg has been feeling very heavy. I actually fell this weekend because I put my left leg down on the floor and there was no feeling so I went straight to the floor. I will see the neurologist next week, so we will see what he says about my symptoms.
This Sunday Jerry and I are going to a conference in Austin to learn about a MS wellness program. I am curious to get more information and find some local programs and support groups.
I hope everyone is getting some much needed rain and stays dry. Have a great week!
Amanda
Thank You Beta Plus!!!
Wednesday September 2, 2009 - Thank you Beta Plus! Beta Plus is a service provided through Betaseron (the medication I am on). I can call and talk to a nurse 24/7, they deal with insurance and they call to check and see how I am doing. Well, our insurance changed yesterday so I had to get the ball rolling with the new insurance so that I don't run out of my medication. Beta Plus called and verified my coverage and all that jazz. Our new insurance charges an arm and a leg for my medication but Beta Plus has a program where no one ever pays more than $50 a month for medication. So I am not getting my medication through my insurance anymore. It is being sent from another company and I have to pay $50 a month and Beta Plus covers the rest up to $6,000 a year. THANK GOD!!!!!! My medication costs about $200 an injection ($2,800 a month) otherwise.
I got my results back from my biopsy and it was normal. Yippee! So for now I don't have to get anymore cut off; I just have to keep an eye on them.
Today was my last day to watch kids at home and I officially start my new job tomorrow at Jerry's office. I am excited but nervous as well. I think it will work out well. I will only be working about 15 hours a week in the office and once I get better at CAD I will be bringing work home.
Both of the kids are a little upset that I am going to work and Emily is having a very hard time because this week I have to leave her with a friend while I am gone. Next week she will start school so hopefully it will be a little easier on her. We will all have to get adjusted to the change.
It has felt a little strange not going to a doctor's office the last couple of weeks.:) That will all change soon. I go back to the neurologist in a couple of weeks and then I will hit one doctor a week for the next month and a half. I think I have an appointment with every doctor I have. I did get Emily in to see a pediatric ophthalmologist; but that is not until mid October.
I hope everyone has a great end to their week.
Amanda
I got my results back from my biopsy and it was normal. Yippee! So for now I don't have to get anymore cut off; I just have to keep an eye on them.
Today was my last day to watch kids at home and I officially start my new job tomorrow at Jerry's office. I am excited but nervous as well. I think it will work out well. I will only be working about 15 hours a week in the office and once I get better at CAD I will be bringing work home.
Both of the kids are a little upset that I am going to work and Emily is having a very hard time because this week I have to leave her with a friend while I am gone. Next week she will start school so hopefully it will be a little easier on her. We will all have to get adjusted to the change.
It has felt a little strange not going to a doctor's office the last couple of weeks.:) That will all change soon. I go back to the neurologist in a couple of weeks and then I will hit one doctor a week for the next month and a half. I think I have an appointment with every doctor I have. I did get Emily in to see a pediatric ophthalmologist; but that is not until mid October.
I hope everyone has a great end to their week.
Amanda
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