Thursday July 30, 2009 - I finally got my results back from the blood work I had done on Friday and everything came back normal. Yippee! I had to go to my family doctor today for a follow up appointment that I was supposed to have a while back. I was supposed to have blood work done for that dr. back in May but that is about the time the wheels fell off so I never had the blood work done. So today I had to have more blood drawn. When I got back home I think Jerry thought I had been in a fight. The lady had to stick me three times today. I hate my veins. I finally broke down and got a prescription for meds to help me sleep. I don't think I have slept well or through the night in about three months. We will see if this helps.
Things have started to slow down around here now if I can just stay out of a doctor's office for awhile. I do have another appointment next week and I hope that is all until September. I think we are all just trying to survive the rest of the summer and are ready for the new school year and my new job. I am very excited about all the changes this fall.
Jerry's mom is coming in the weekend and Dylan has a soccer game on Saturday so I am sure we will have some excitement this weekend. I hope you all have a great weekend!
Amanda
Happy Friday!
Friday July 24, 2009 - I hope everyone has had a good week. Jerry took Wednesday through today off of work. He took Emily to lunch, Dylan to the movies and me to dinner on Wednesday. I was off on Thursday so we went to see Up as a family and made homemade pizza together. We have all missed having Jerry home so it was nice to have him here for a few days.
I did go to the ophthalmologist today and was there forever. He told me what I expected, he can't correct my vision any. My optic nerve is still damaged and he is not sure it will get much better. I will go back in a few months to have pictures taken of my optic nerve. My color vision has also gotten worse and my blind spot is right in the middle of my eye. The ophthalmologist told me I have it in the worse place possible. :( So my vision has improved about 75% since my first visit in May. I think I have adjusted to not being able to see very well out of my right eye.
I also went to have my blood work done today. Lucky me, they had to stick me twice again. I told the girl that my veins are difficult and she said but you have a nice big one here. So she stuck me and got nothing. Ha! So she had to have another lady try. I should have my results back Monday. We are hoping for normal liver and blood counts.
As for my medication I am still on the .50 dose and will go up to .75 on Tuesday. I am still tolerating the medication but have started to have some skin reactions. Nothing serious just noticeable. Speaking of skin reactions, the bruise from where I hit the vein is almost gone. It has been almost two weeks.
I have been wanting to get out and exercise but it has been too hot. So I decided to start Yoga again so I can be inside where it is cool and do something relaxing. If anyone has any Yoga DVD suggestions I would greatly appreciate it.
Well, I think that is all for today. I hope you all enjoy your weekend!
Amanda
I did go to the ophthalmologist today and was there forever. He told me what I expected, he can't correct my vision any. My optic nerve is still damaged and he is not sure it will get much better. I will go back in a few months to have pictures taken of my optic nerve. My color vision has also gotten worse and my blind spot is right in the middle of my eye. The ophthalmologist told me I have it in the worse place possible. :( So my vision has improved about 75% since my first visit in May. I think I have adjusted to not being able to see very well out of my right eye.
I also went to have my blood work done today. Lucky me, they had to stick me twice again. I told the girl that my veins are difficult and she said but you have a nice big one here. So she stuck me and got nothing. Ha! So she had to have another lady try. I should have my results back Monday. We are hoping for normal liver and blood counts.
As for my medication I am still on the .50 dose and will go up to .75 on Tuesday. I am still tolerating the medication but have started to have some skin reactions. Nothing serious just noticeable. Speaking of skin reactions, the bruise from where I hit the vein is almost gone. It has been almost two weeks.
I have been wanting to get out and exercise but it has been too hot. So I decided to start Yoga again so I can be inside where it is cool and do something relaxing. If anyone has any Yoga DVD suggestions I would greatly appreciate it.
Well, I think that is all for today. I hope you all enjoy your weekend!
Amanda
It Is Too HOT!
Sunday July 19, 2009 - I hope everyone is staying cool. We have had a pretty good weekend. I went to Dylan's soccer game with Jerry and Emily on Saturday hoping to not get too hot. After about 30 minutes I was getting very hot. Once we got in the car I realized that my vision was worse from getting overheated. I guess it is time to look into a cooling vest. My neurologist mentioned it several weeks ago but I just thought I didn't need it or didn't want to need it. I guess I just don't want to accept that I can't go outside whenever I want to. I think I am still in denial of everything that has happened in the last two months.
The last several days have been hard on me and I guess everyone. We can't go outside during the day because of the heat so the kids and I are going stir crazy. We are also stuck at home more now because we are down to one car. The kids are also starting to have a very hard time with Jerry being gone so much. I thought it was hard at first but it has only gotten worse. We are going to have to make some changes around here for every one's sake.
We have already decided that me staying home and watching kids is not going to work anymore for several reasons. One, I don't think it is fair to the parents of the kids I watch to always feel like they may not have childcare one day because of the unpredictability of MS. Second, I am in desperate need of time away from the house. I need to talk to other adults and feel like I have an identity. The plan is for me to watch kids until the end of August and then once school starts Emily will be in school three days a week and I will work on those days. I am actually a little excited about working again. I have not worked in an office in 6 years.
Well, I guess that is all the venting I will do for today. I hope everyone has a great week and I will update you on how my ophthalmologist appointment goes on Friday.
Amanda
The last several days have been hard on me and I guess everyone. We can't go outside during the day because of the heat so the kids and I are going stir crazy. We are also stuck at home more now because we are down to one car. The kids are also starting to have a very hard time with Jerry being gone so much. I thought it was hard at first but it has only gotten worse. We are going to have to make some changes around here for every one's sake.
We have already decided that me staying home and watching kids is not going to work anymore for several reasons. One, I don't think it is fair to the parents of the kids I watch to always feel like they may not have childcare one day because of the unpredictability of MS. Second, I am in desperate need of time away from the house. I need to talk to other adults and feel like I have an identity. The plan is for me to watch kids until the end of August and then once school starts Emily will be in school three days a week and I will work on those days. I am actually a little excited about working again. I have not worked in an office in 6 years.
Well, I guess that is all the venting I will do for today. I hope everyone has a great week and I will update you on how my ophthalmologist appointment goes on Friday.
Amanda
Walk MS
Wednesday July 15, 2009 - I wanted to invite all of you to join me on Saturday October 10, 2009 at the Dell Diamond for the Austin MS walk. You can go to the link below to register. If you are not able to walk and you would like to make a donation to the MS Society you can go to my page at the link below. As we all know money is needed to fund research to find a cure for MS. Thanks for your support!
Amanda
http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=6864140&pg=personal&fr_id=11720
Amanda
http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=6864140&pg=personal&fr_id=11720
Don't hit a blood vessel
Monday June 13, 2009 - Well I figured out last night that I need to be little more careful doing my injections. Apparently I hit a blood vessel or vein. It did not hurt going in but I knew as soon as I pulled the needle out it was not good. Lots of blood came out and my entire body got hot and I felt like I was going to pass out. I immediately called the Beta nurse line and left a message to have them call me back. I wanted to make sure I didn't need to go to the ER. While I was waiting for her to call I got online and did some research and found a lady that injected her medication into her vein and she stopped breathing. So at that point I got off the computer and waited. The nurse called and seemed to think I probably just hit a blood vessel but did not know what would cause the heat sensation. So I decided to stay up for awhile to make sure I was going to be okay. That is the one problem with doing your injection at night. Other than the scare last night I am doing fine.
I keep forgetting to post about my vision so I guess I will update you on that while I am at it. When I went to the neurologist last week it was 20/40 (up close). So it had improved some since the time before when it had gotten worse. I don't feel like my vision has really improved much. I am trying to drive as little as possible because I don't have good peripheral vision or depth perception in my right eye. I will go back to the ophthalmologist next Friday and will know more then. I am hoping he can correct my right eye some but usually with optic neuritis they can't correct it with glasses or contacts because of the damage that has been done to the optic nerve. My brain is just not getting the information it needs for me to be able to see.
I hope you all have a great week. Try to stay cool!
Amanda
I keep forgetting to post about my vision so I guess I will update you on that while I am at it. When I went to the neurologist last week it was 20/40 (up close). So it had improved some since the time before when it had gotten worse. I don't feel like my vision has really improved much. I am trying to drive as little as possible because I don't have good peripheral vision or depth perception in my right eye. I will go back to the ophthalmologist next Friday and will know more then. I am hoping he can correct my right eye some but usually with optic neuritis they can't correct it with glasses or contacts because of the damage that has been done to the optic nerve. My brain is just not getting the information it needs for me to be able to see.
I hope you all have a great week. Try to stay cool!
Amanda
TGIF
Friday July 10, 2009 - I had my appointment today and as I suspected it was very uneventful. They are happy that I am doing so well on the medication. She told me that since they feel that they caught it early and that I am on the medication I should have a good prognosis. Now I am just hoping for a cure and then a way to fix the damage that has been done. I have to go in for blood work in two weeks to check my liver and blood counts. This medication can cause liver damage and low blood counts. I will go back to the neurologist in September unless I have an issue before then. I am crossing my fingers that I don't have another attack anytime soon. I hope you all have a great weekend!
* Thank you to everyone for your emails and comments.
Amanda
* Thank you to everyone for your emails and comments.
Amanda
Nothing New
Monday July 6, 2009 - We had a very relaxing weekend. The kids played in the pool and we went and watched fireworks. I was not ready for Monday. I don't really have anything to report. My injections are still going well. I will go back to the neurologist on Friday just to check in. The pain in my left eye finally started to go away at the end of last week. I still have no idea what was causing the pain. Well, I hope everyone has a great week!
Amanda
Amanda
Eat at Chili's
Thursday July 2, 2009 - For those of you living in South Texas you may want to add July 21st to your calendar. Chili's will donate 10% of your check to the National MS Society Lone Star Chapter. Be sure to print the flyer out and take it with you.
http://http://photos.templin.org/MS-LSC-Chilis-Flyer.pdf
Things here are going well. We are looking forward to a restful weekend. I hope you all have a great July 4th weekend!
Amanda
http://http://photos.templin.org/MS-LSC-Chilis-Flyer.pdf
Things here are going well. We are looking forward to a restful weekend. I hope you all have a great July 4th weekend!
Amanda
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