Wednesday August 26, 2009 - Hello everyone. I hope you have all had a great start to the new school year. Dylan had his second day of school today. He likes his teacher and says he likes school now. He is very excited that he gets to ride the bus this year. Last year he was dropped off and picked up at school and next year when our neighborhood school opens he will not be able to ride the bus. Dylan has several friends in his class; which is good. As some of you know Dylan was at one school last year, another school this year and will be at a new school next year. A lot of changes, but it helps to have some familiar faces in class.
I went to the dermatologist today to have my skin looked at. I was supposed to have it done years ago but never did. I went in and had my moles looked at and had one removed and we are watching several others. If the biopsy on the one removed today comes back abnormal I will go back and have the other four or so removed. We also decided it was time to start treating my rosacea. I have very sensitive skin and I am having a hard time finding something that does not irritate my skin. I brought home facial cleanser, moisturizer plus sunscreen and a gel for the rosacea. I hope it works. I will go back in about a month to look at my other moles, the one I had removed and see if the products I came home with today are working.
As for my MS symptoms.......I have not had any improvement in my vision, I still have some days that I am very tired and my right leg and foot still tingle at times. I am also still having the tingle and pain in my left arm and hand from my herniated disc in my neck. Overall I feel good most days and just try to ignore the pain and tingles. Thank you to all of you for your support! I hope you all have a great rest of the week.
Amanda
End of Summer
Sunday August 23, 2009 - It has been awhile since my last post. Lots has happened since my last post. Dylan had his last soccer game of the season, the kids and I went to San Antonio for several days and we have met Dylan's 1st grade teacher.
Dylan's last soccer game was by far the most exciting game of the season. It ended up being a tie so both teams put up a good fight.;) We are taking the fall off but I am hoping to get Dylan back into soccer in the spring. He had fun and I think he was finally starting to get the hang of it.
After the game we rode with my mom to San Antonio. We got to see family, spend time at the pool and learn how to fish. We all had a good time. It was nice to get away from home for a few days.
While I was in San Antonio my cooling equipment came. I now have a vest, neck wrap, 2 wrist wraps and a pillow case that holds ice packs. I think we have more ice packs in our freezer than you can find in any store. I have used the neck wrap and it works well. I have not used the vest yet. Jerry said it makes me look like I am going hunting. Owell!
My injections are going well. I am still having skin reactions in spots and the medication burns going in. I have learned that I need to stay on the Tylenol that I take before my injections. On Wednesday I thought I would be smart and not take the Tylenol. Well, I woke up around 1 am to go to the restroom and I felt awful. I was shivering like it was freezing in the house and sweating. I could not get comfortable and felt like I was going to crawl out of my skin. I was so tired on Thursday I spent most of the morning sleeping.
We have had a nice weekend. Jerry was off on Friday night and Saturday. Friday we had meet the teacher and then we went to dinner. Saturday we got up and went to breakfast as a family which was nice. My brother came into town and stayed the night. Today I am doing laundry and Jerry had to go to work. :( Back to the same old routine.
This next few weeks will be a big change. Dylan starts school on Tuesday, Emily will start in two weeks and I will start working. Lots of excitement! I will let you all know how it goes. I am ready to get back to our school routine. I hope you all have a great week and a great first week of school for those of you going back or that have kids in school.
Amanda
Dylan's last soccer game was by far the most exciting game of the season. It ended up being a tie so both teams put up a good fight.;) We are taking the fall off but I am hoping to get Dylan back into soccer in the spring. He had fun and I think he was finally starting to get the hang of it.
After the game we rode with my mom to San Antonio. We got to see family, spend time at the pool and learn how to fish. We all had a good time. It was nice to get away from home for a few days.
While I was in San Antonio my cooling equipment came. I now have a vest, neck wrap, 2 wrist wraps and a pillow case that holds ice packs. I think we have more ice packs in our freezer than you can find in any store. I have used the neck wrap and it works well. I have not used the vest yet. Jerry said it makes me look like I am going hunting. Owell!
My injections are going well. I am still having skin reactions in spots and the medication burns going in. I have learned that I need to stay on the Tylenol that I take before my injections. On Wednesday I thought I would be smart and not take the Tylenol. Well, I woke up around 1 am to go to the restroom and I felt awful. I was shivering like it was freezing in the house and sweating. I could not get comfortable and felt like I was going to crawl out of my skin. I was so tired on Thursday I spent most of the morning sleeping.
We have had a nice weekend. Jerry was off on Friday night and Saturday. Friday we had meet the teacher and then we went to dinner. Saturday we got up and went to breakfast as a family which was nice. My brother came into town and stayed the night. Today I am doing laundry and Jerry had to go to work. :( Back to the same old routine.
This next few weeks will be a big change. Dylan starts school on Tuesday, Emily will start in two weeks and I will start working. Lots of excitement! I will let you all know how it goes. I am ready to get back to our school routine. I hope you all have a great week and a great first week of school for those of you going back or that have kids in school.
Amanda
Full Dose, Finally
Thursday August 13, 2009 - I am finally on the full dose of my medication. I am still not having any side effects other than the skin reactions. The skin reactions just look like big red bruises that take forever to fade away, 6 - 8 weeks to be exact. I am just glad they don't hurt.
I have started to have a little bit of tingling in my right leg and foot. It is very slight and does not really bother me until I am trying to go to sleep. It feels almost like my leg is asleep but very faint. I am just crossing my fingers that it does not get worse.
Yesterday was a very busy day. I had to take Jerry to work, Dylan to camp and the eye doctor, our cat to the doctor and Emily to the doctor. Dylan still does not need glasses but does have an astigmatism. So we will wait until next year and check again. I took Emily to the doctor to have her eyes checked as well. She has been turning her head to watch TV and squinting. So the nurse that checked her said her vision is 20/40 but that I should not worry about it since she is only 3. So I brought up the turning the head and she said I don't know about that. So I talked to the doctor and as soon as I mentioned her turning her head he said "I don't like that". So he has referred us to a pediatric ophthalmologist in the same office as my doctor. I have called the doctor but she is booked through December. We are trying to get her to squeeze us in ASAP. One, I want to get in and find out what is going on with her vision but I also want to get her in before our insurance changes.
Well I guess that is all around here for now. I hope everyone has a great weekend.
Amanda
I have started to have a little bit of tingling in my right leg and foot. It is very slight and does not really bother me until I am trying to go to sleep. It feels almost like my leg is asleep but very faint. I am just crossing my fingers that it does not get worse.
Yesterday was a very busy day. I had to take Jerry to work, Dylan to camp and the eye doctor, our cat to the doctor and Emily to the doctor. Dylan still does not need glasses but does have an astigmatism. So we will wait until next year and check again. I took Emily to the doctor to have her eyes checked as well. She has been turning her head to watch TV and squinting. So the nurse that checked her said her vision is 20/40 but that I should not worry about it since she is only 3. So I brought up the turning the head and she said I don't know about that. So I talked to the doctor and as soon as I mentioned her turning her head he said "I don't like that". So he has referred us to a pediatric ophthalmologist in the same office as my doctor. I have called the doctor but she is booked through December. We are trying to get her to squeeze us in ASAP. One, I want to get in and find out what is going on with her vision but I also want to get her in before our insurance changes.
Well I guess that is all around here for now. I hope everyone has a great weekend.
Amanda
Insurance and stuff
Sunday August 9, 2009 - I hope everyone has had a great weekend. We had Dylan's soccer game yesterday and then we had to take Jerry to work. While we were sitting in the car talking before he had to go; the car all of the sudden lunged forward. A lady pulled in behind us and hit the back of my car. Ugh! She thought it was so funny. Dylan said we should call the police and have her put in jail. Luckily she didn't do any damage but sometime in the last week someone hit my bumper another time and did do damage. So irritating. Other than that yesterday was a fairly lazy day. I didn't feel like doing much of anything. I spent half of today in bed and did finally get up and start doing some cleaning that is way overdue.
I have been up a lot at night with stuff on my mind. Lately it has been about insurance. We just paid a lot of money for medical bills in the last month and a half and have met our deductible. So we thought we would not have anymore out of pocket this year. WRONG! Our insurance will be changing September 1st. This is a new company and after you have met your deductible you still have to pay 20%. There is a cap on out of pocket but it is $12,000 plus the monthly premiums. WOW! How in the world are we going to afford that? With my medication, MRI's, lab work and doctor's visits we will end up spending lots of money.
I was also reading a story about bankruptcy that I thought was interesting and scary. A very large percentage of people that file for bankruptcy file because of medical bills and around 70% of those people have health insurance. Not Good!
So here we are with a bad economy, an already tight budget and more medical bills. Seems to be the norm right now everywhere. I will be so glad when things pick up. Well, I will stop venting now; just had to get that off my chest and maybe I will be able to sleep tonight. I hope everyone has a great week!
Amanda
I have been up a lot at night with stuff on my mind. Lately it has been about insurance. We just paid a lot of money for medical bills in the last month and a half and have met our deductible. So we thought we would not have anymore out of pocket this year. WRONG! Our insurance will be changing September 1st. This is a new company and after you have met your deductible you still have to pay 20%. There is a cap on out of pocket but it is $12,000 plus the monthly premiums. WOW! How in the world are we going to afford that? With my medication, MRI's, lab work and doctor's visits we will end up spending lots of money.
I was also reading a story about bankruptcy that I thought was interesting and scary. A very large percentage of people that file for bankruptcy file because of medical bills and around 70% of those people have health insurance. Not Good!
So here we are with a bad economy, an already tight budget and more medical bills. Seems to be the norm right now everywhere. I will be so glad when things pick up. Well, I will stop venting now; just had to get that off my chest and maybe I will be able to sleep tonight. I hope everyone has a great week!
Amanda
20/60
Tuesday August 4, 2009 - 20/60 is my vision in my right eye with corrective lenses. I went to the ophthalmologist today to get a new prescription for contacts and glasses. The poor lady checking my eyes did not completely look at my chart before she had me look at the letters on the wall and freaked out a little when my vision was so bad in the right eye.:)
I called and got my results from the lab work done last week. Everything came back normal. I think they checked everything they could possibly check. I also finally went and picked up the prescription for my "cooling equipment". Hopefully I will have it before we go to the coast in September.
I do have a little break before more appointments. I don't go back to the neurologist until the end of next month, my family doctor until October and the ophthalmologist in November unless something happens between now and then.
We are participating in Walk MS in Round Rock on Saturday October 10, 2009. I would love for everyone to join me. You can go to my fundraising page to either sign up for the walk or to make a donation.
http://walktxh.nationalmssociety.org/site/TR?px=6864140&pg=personal&fr_id=11720
I hope everyone is having a great week.
Amanda
I called and got my results from the lab work done last week. Everything came back normal. I think they checked everything they could possibly check. I also finally went and picked up the prescription for my "cooling equipment". Hopefully I will have it before we go to the coast in September.
I do have a little break before more appointments. I don't go back to the neurologist until the end of next month, my family doctor until October and the ophthalmologist in November unless something happens between now and then.
We are participating in Walk MS in Round Rock on Saturday October 10, 2009. I would love for everyone to join me. You can go to my fundraising page to either sign up for the walk or to make a donation.
http://walktxh.nationalmssociety.org/site/TR?px=6864140&pg=personal&fr_id=11720
I hope everyone is having a great week.
Amanda
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